So to quickly sum up my journey with allergies it started a while ago, in primary school and it was pretty mild to be honest, just the usual hayfever and grasses problems, it was only when I hit my late teens that I started to have more problems with hayfever needing injections to control it. That settled down in my early 20's and I had my first little bundle. A beautiful baby girl, Annalise. All was well until she was about 3 weeks old and she started to get eczema, so we then started on the roller coaster ride of trying to stop flare ups, while trying to work out what could be causing it. (Side note, for anyone out there that needs to put cold wraps on their baby my heart goes out to you, this was horrible because she hated them being done) We also had well meaning people giving us advice on what to do, which made it even more confusing because at the end of the day we just wanted to give our baby girl relief. So we ended just listening to the doctors. We did the usual diet elimination, which didn't work. When Annalise was finally old enough we were able to do testing and get more help. When Annalise was first diagnosed the doctors told us when she was little that she will grow out of it, she never did. Annalise is now in her early 20's and still struggles with it, so far she has had several operations, with more to come. She is allergic to large amounts of things, even toothpaste, and battles with staph infections, scarring, changes in skin pigmentation, constant changing of creams because her body would get "use to" the treatment so we would have to try another way. Annalise is allergic to large amounts of things. But despite this horrible disease, she is a strong independent women and never lets it get in her way.
My allergies got worse around my 40's (as if turning 40 wasn't enough haha) I started to get more rashes, skin crawling feeling etc etc then I had big reaction which landed me in emergency while on holidays!!! Creams, oral steroids etc etc, after a couple more trips to emergency, I spoke to my doctor, who was useless I have to say (blog coming up about doctors grrr!!!) so I battled on trying to work out what was going on, then the my body decided to step it up and I started to have really nasty reflux, went on nexium. When it didn't work I was really annoyed, then excessive burping and the other end started happening. Then my throat started to tighten, and eventually it started to completely close up and I started to choke. Scary stuff!! Again go to the doctor and he said that it will be OK and its probably related to my exercise asthma (seriously!!). Well it started to get really bad and I went to another Doctor, he sent me straight away to have an gastroscopy. I'll summarize after a couple of scopes I was diagnosed with EoE (I'll explain this in a later post). Which basically brings me to now.
Eleanor x
Dealing with the daily struggles of eosinophilic esophagitis (EoE) and allergies.
Saturday, 21 October 2017
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Reccent RPA appointment
I had a appointment this week with the RPA allergy unit, It was great as I didn't have to go to Sydney to have the appointment, It was d...
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Eosinophilic (ee-uh-sin-uh-fil-ik) Esophagitis (EoE) is a chronic allergic/immune condition. It is an inflammation of the esophagus. It ha...
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So to quickly sum up my journey with allergies it started a while ago, in primary school and it was pretty mild to be honest, just the usual...
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I had a appointment this week with the RPA allergy unit, It was great as I didn't have to go to Sydney to have the appointment, It was d...
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